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Don't assume that because I look well, I feel well. Looks can be deceiving. Many days I look great but feel terrible.

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Don't say, "I know how you feel." No one knows how anyone else feels. We all have varying thresholds of pain, and pain cannot be measured

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Don't tell me about your Aunt Gertrude and how she managed in spite of it. I am doing the best I can.

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Don't tell me, "It could be worse." I don't need to be reminded.

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Don't decide what I am capable of doing. Allow me to make those decisions. There may be times I'm wrong, but I'll know soon enough.

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Don't be upset that you cannot ease my problems. It won't do any good for both of us to be miserable.

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Don't ask me how I feel unless you really want to know. You may hear a lot more than you are prepared to listen to.

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Don't assume that because I did a certain thing yesterday that I can do it today.

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Don't tell me about the latest fad cure. If there is a legitimate treatment, my doctor will let me know.

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Do realize that I am angry and frustrated with the disease, not with you.

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Do let me know you are available to help me when I ask.

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Do offer me lots of encouragement.

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Do understand why I cancel plans at the last minute. I never know from one day to the next how I will feel.

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Do continue to invite me to activities. Just because I am not able to ride a bike along with the gang does not mean I can't meet you for the picnic at the end of the trail.

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Please Let Me Decide





TRIPLES with EMMA